Leaving for Disneyworld

Early tomorrow morning, we are headed to Orlando for Joshua’s Make-a-Wish Trip. We’ve looked forward to it for some time now, both as a vacation and a celebration of sorts. It’s not that Joshua’s treatment is by any means over or less significant when we come back; it’s more of us celebrating the faithfulness of God through the process.

So because we’re going on vacation, I’m going to take a blog-cation for the next week. Little to no posting between now and next Thursday.

I leave you with this: here’s the text of our first blog entry, written the day Joshua was diagnosed with leukemia, now 2 1/2 years ago:

113_1353On Wednesday, October 18, I took Joshua to his peditrician in Cool Springs. He had what we thought was a rash on his stomach, and were sure that the doctor would give us some cream or an anti-biotic. When we saw the doctor, he was concerned that the “rash” was actually not a rash, but something more serious. He took some blood from Joshua, and came back and told me alot of stuff that could actually be causing this. What we thought was a rash was actually something called petekeai, which are capillaries bursting below the surface of the skin.

The blood test revealed that Joshua’s platelet count was low and his white blood cell count was high. The doctor told me a few things that might be the root cause of this, and it was at this point that he first said the word “leukemia.” He routed us to the hematology department at Vanderbilt Children’s Hospital. Jana left school and met us there. They took some more blood and then the doctor confirmed the diagnosis – Joshua has leukemia.

We are learning at least some of what that means. Essentially, leukemia is a cancer of the blood. The bone marrow is responsible for producing the different types of blood cells, and in Joshua, something has gone bad in the bone marrow. He is producing cancerous cells and that needs to be corrected. So after we checked into the hospital on Wednesday, Joshua began chemotherapy on Thursday. He had medicine injected into his spinal fluid to eradicate any cancerous cells that were in that fluid which flows around his brain. He also took medicines orally and had some more injected in through his IV.

Chemotherapy basically has two purposed (as we understand it so far). The first purpose if to kill the cancerous cells. Unfortunately, in killing these cells, it also kills the good ones. That’s why chemo patients become more susceptible to disease and infection; their good, disease fighting cells have been killed off along with the bad ones. The second purpose is to try and correct the problem inside the marrow so that they don’t keep on producing bad cells.

Amazingly enough, there is chance that Joshua could be in remission by day 7 or 8 of chemotherapy. That would mean that he has less than 5% of his cells that have been affected by leukemia. Regardless of how quickly he responds to it however, he will have treatments for the next 3 years; most of that time hopefully will be spent doing prevention and maintanance.

We hope this blog will be helpful for you as you walk along this road with us. Thanks already for your love and support.

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5 Comments

  • Jason Smith says:

    Praying for an absolutely amazing time for you guys!

  • Becky Dietz says:

    Disney is waiting for the Kelley family! I was just in Florida and heard the word! I hope your time is BLESSED!!!

  • Andy P. says:

    Can’t wait to hear about the trip.

    And I remember the day he was diagnosed like it was yesterday.

  • TheDeeZone says:

    Have fun in the Land of the Mouse. Are you staying on property? I posted something a while back on my blog about my favorite Disney tips.

  • Rachael says:

    My thoughts and prayers are with you and your family. He is a cutie! I have a little one too! I cant even begin to process what that must be like as a parent. I hope your trip was a wonderful one! Stay well!

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